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Trivia night showing support

October 22, 2022 BY

Raising awareness: Scarlett Darrell takes care of her daughter Arli who has refractory epilepsy. Photo: TIM BOTTAMS

AN upcoming trivia night organised by the Invermay Primary School’s parents and friends committee is being held with the aim of raising funds for one of their children.

Money raised will go towards home equipment to aid Arli Darrell, who was diagnosed with refractory epilepsy at four months old.

Arli’s mother, Scarlett Darrell, said the systems will be essential for her daughter’s development.

“The main item we need is a hoist. We’re also looking at an outdoor swing because there’s one or two public ones in Ballarat she can use,” she said.

“We’re looking at a walker system to initiate some steps, a low bed with high sides and ramps for the front and back of the house.

“This has caused a global development delay so she can’t crawl, she can’t sit up unassisted, she can’t walk or talk.

“Some kids can grow out of this from the ages of two to four. Arli will be four in December. She can have up to 10 seizures and on a bad day it can be 30 or 40.”

While Arli attends kindergarten at Ballarat Specialist School, her brother Huey attends Invermay Primary School, of which Ms Darrell is a member of the parents and friends.

“It’s hard to ask for help but we’re incredibly thankful to Invermay Primary and the parents committee. They’ve all done so much to help Arli and our family,” she said.

The trivia night’s set for Friday, 28 October at the Specialist School Farm. Donations can be made via Invermay Primary School on 5332 6396.