	{"id":81974,"date":"2022-01-29T04:57:05","date_gmt":"2022-01-28T17:57:05","guid":{"rendered":"https:\/\/timesnewsgroup.com.au\/ballarat\/?p=81974"},"modified":"2022-01-25T18:20:44","modified_gmt":"2022-01-25T07:20:44","slug":"raising-voices-for-childhood-stroke","status":"publish","type":"post","link":"https:\/\/timesnewsgroup.com.au\/ballarat\/news\/raising-voices-for-childhood-stroke\/","title":{"rendered":"Raising voices for childhood stroke"},"content":{"rendered":"<p>WHEN Dee Banks gave birth to her daughter, Emma, she had no idea she had suffered a stroke in utero.<\/p>\n<p>It wasn\u2019t until she noticed Emma wasn\u2019t developing as fast as other children in her mother\u2019s group that she sought doctor\u2019s advice.<\/p>\n<p>When describing her situation, she was told she was simply overreacting, a paranoid first-time mum.<\/p>\n<p>\u201cI noticed that Emma wasn\u2019t reaching with both hands when she was about five months old, we would take her to mother\u2019s group and the other kids would be playing with their toys or rolling over and achieving their major milestones, but Emma wasn\u2019t,\u201d Ms Banks said.<\/p>\n<p>\u201cI took her to the GP a number of times and I was just made to feel like a paranoid first-time mum and there was no intervention.<\/p>\n<p>Finally being referred to a paediatric physio at the Peter Heinz Centre by her maternal child health nurse, Ms Banks was told to seek a paediatrician immediately.<\/p>\n<p>\u201cEmma had an urgent MRI and was diagnosed with a stroke in utero,\u201d she said. \u201cShe had lost a significant part of the left side of her brain when she had her stroke.\u201d<\/p>\n<p>Emma is now almost seven years old and enjoying her childhood, although has some issues with her right limbs.<\/p>\n<p>Her mother\u2019s passion for advocating for childhood stroke has continued however, to make sure other parents don\u2019t have to go through what she did.<\/p>\n<p>Ms Banks formed the Little Stroke Warriors, an initiative taken on board by the Stroke Foundation last year.<\/p>\n<p>The foundation recently announced a new initiative, a Childhood Stroke Lived Experience Advisory Group, comprised of six adults who had strokes as a child, and six parents of young survivors.<\/p>\n<p>\u201cThe advisory group is something that was always a really big passionate focus for me,\u201d Ms Banks said.<\/p>\n<p>\u201cI know we all have experts in different fields that assist us in the stroke journey, but with lived experience, there\u2019s really nothing like it. No one can ever study what it\u2019s like to live with strokes.\u201d<\/p>\n<figure id=\"attachment_80243\" aria-describedby=\"caption-attachment-80243\" style=\"width: 218px\" class=\"wp-caption aligncenter\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-80243 size-medium\" src=\"https:\/\/timesnewsgroup.com.au\/goldenplains\/wp-content\/uploads\/sites\/23\/2022\/01\/IMG_3120-218x300.jpg\" alt=\"\" width=\"218\" height=\"300\" \/><figcaption id=\"caption-attachment-80243\" class=\"wp-caption-text\">Dee Banks is one of 12 people that make up the Stroke Foundation\u2019s Childhood Stroke Lived Experience Advisory Group.<\/figcaption><\/figure>\n<p>Through her advocacy, Ms Banks not only found that she\u2019s not alone in her experience with Emma, but there was a glaring inequality between adults\u2019 treatment for stroke and children\u2019s.<\/p>\n<p>\u201cChildren who have a stroke postnatally or in their early childhood would go to emergency departments and often be waiting days or weeks for a stroke diagnosis, and by that stage the damage is done,\u201d she said.<\/p>\n<p>\u201cWe want equality in care in the acute clinical setting, and for children to be treated like an adult who\u2019s had a stroke in terms of timely response, access to treatment, care and rehabilitation.<\/p>\n<p>Ms Banks said she is also advocating for the language used by doctors to change.<\/p>\n<p>\u201cWe all get given this really grim prognosis for our children and it brings you to your knees, but a lot of the time it\u2019s not true,\u201d she said.<\/p>\n<p>According to the Stroke Foundation, about 600 Australian children have a stroke each year, with approximately one third of all cases occurring in children less than one year old.<\/p>\n<p>Fifty to 85 per cent of stroke survivors will be left with long-term problems including seizures, physical disability, speech or learning difficulties.<\/p>\n<p>The advisory group plans to meet four times a year to inform the Stroke Foundation\u2019s activities and projects, providing valuable insight to improve childhood stroke survivors\u2019 quality of care.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>WHEN Dee Banks gave birth to her daughter, Emma, she had no idea she had suffered a stroke in utero. It wasn\u2019t until she noticed Emma wasn\u2019t developing as fast as other children in her mother\u2019s group that she sought doctor\u2019s advice. When describing her situation, she was told she was simply overreacting, a paranoid [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/timesnewsgroup.com.au\/ballarat\/news\/raising-voices-for-childhood-stroke\/\">Read More&#8230;<\/a><\/p>\n","protected":false},"author":185,"featured_media":81975,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[7],"tags":[],"post_folder":[],"class_list":["post-81974","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Raising voices for childhood stroke - Ballarat Times<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/timesnewsgroup.com.au\/ballarat\/news\/raising-voices-for-childhood-stroke\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Raising voices for childhood stroke - Ballarat Times\" \/>\n<meta property=\"og:description\" content=\"WHEN Dee Banks gave birth to her daughter, Emma, she had no idea she had suffered a stroke in utero. It wasn\u2019t until she noticed Emma wasn\u2019t developing as fast as other children in her mother\u2019s group that she sought doctor\u2019s advice. When describing her situation, she was told she was simply overreacting, a paranoid [...]Read More...\" \/>\n<meta property=\"og:url\" content=\"https:\/\/timesnewsgroup.com.au\/ballarat\/news\/raising-voices-for-childhood-stroke\/\" \/>\n<meta property=\"og:site_name\" content=\"Ballarat Times\" \/>\n<meta property=\"article:published_time\" content=\"2022-01-28T17:57:05+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/static.timesnewsgroup.com.au\/prod\/uploads\/sites\/9\/2022\/01\/IMG_3113-2-e1643095222534.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1000\" \/>\n\t<meta property=\"og:image:height\" content=\"600\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Jonathon Magrath\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Jonathon Magrath\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/news\\\/raising-voices-for-childhood-stroke\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/news\\\/raising-voices-for-childhood-stroke\\\/\"},\"author\":{\"name\":\"Jonathon Magrath\",\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/#\\\/schema\\\/person\\\/2cdab3faaf6adb4dd0a7be4fa1d07894\"},\"headline\":\"Raising voices for childhood stroke\",\"datePublished\":\"2022-01-28T17:57:05+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/news\\\/raising-voices-for-childhood-stroke\\\/\"},\"wordCount\":607,\"publisher\":{\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/#organization\"},\"image\":{\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/news\\\/raising-voices-for-childhood-stroke\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/static.timesnewsgroup.com.au\\\/prod\\\/uploads\\\/sites\\\/9\\\/2022\\\/01\\\/IMG_3113-2-e1643095222534.jpg\",\"articleSection\":[\"News\"],\"inLanguage\":\"en-AU\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/news\\\/raising-voices-for-childhood-stroke\\\/\",\"url\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/news\\\/raising-voices-for-childhood-stroke\\\/\",\"name\":\"Raising voices for childhood stroke - Ballarat Times\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/news\\\/raising-voices-for-childhood-stroke\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/news\\\/raising-voices-for-childhood-stroke\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/static.timesnewsgroup.com.au\\\/prod\\\/uploads\\\/sites\\\/9\\\/2022\\\/01\\\/IMG_3113-2-e1643095222534.jpg\",\"datePublished\":\"2022-01-28T17:57:05+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/news\\\/raising-voices-for-childhood-stroke\\\/#breadcrumb\"},\"inLanguage\":\"en-AU\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/news\\\/raising-voices-for-childhood-stroke\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-AU\",\"@id\":\"https:\\\/\\\/timesnewsgroup.com.au\\\/ballarat\\\/news\\\/raising-voices-for-childhood-stroke\\\/#primaryimage\",\"url\":\"https:\\\/\\\/static.timesnewsgroup.com.au\\\/prod\\\/uploads\\\/sites\\\/9\\\/2022\\\/01\\\/IMG_3113-2-e1643095222534.jpg\",\"contentUrl\":\"https:\\\/\\\/static.timesnewsgroup.com.au\\\/prod\\\/uploads\\\/sites\\\/9\\\/2022\\\/01\\\/IMG_3113-2-e1643095222534.jpg\",\"width\":1000,\"height\":600,\"caption\":\"Loving: Dee Banks with daughter, Emma, who suffered a stroke in utero. 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