{"id":38862,"date":"2021-03-25T00:28:28","date_gmt":"2021-03-24T13:28:28","guid":{"rendered":"https:\/\/timesnewsgroup.com.au\/bellarinetimes\/?p=38862"},"modified":"2021-03-24T16:30:31","modified_gmt":"2021-03-24T05:30:31","slug":"wills-wish-portarlington","status":"publish","type":"post","link":"https:\/\/timesnewsgroup.com.au\/bellarinetimes\/news\/wills-wish-portarlington\/","title":{"rendered":"Port community and visitors unite to support Will\u2019s Wish"},"content":{"rendered":"

WHEN Will Tasic isn\u2019t feeling well and his family are having a tough time, they head to Portarlington, which they say is \u201cthe best medicine in the world\u201d.<\/p>\n

Will, 14, has a rare neurological condition called optical neuritis, which is caused by myelin oliogdendrecyte glycoprotein antibody positive.<\/p>\n

He was diagnosed at age nine and will undergo his 15th MRI brain scan next week.<\/p>\n

\u201cWill felt like he had something in his eye and they told me it was a virus, and then we were rushed to the Royal Children\u2019s Hospital and it took 11 hours to stabilise him,\u201d mum Angie said.<\/p>\n

\u201cHe had inflamed optic nerves so it was called optical neuritis, but then he relapsed a year later so now they say it is reoccurring.<\/p>\n

\u201cThere are 138 children in Australia with the condition.\u201d<\/p>\n

Angie said Will suffered from a lot of headaches, nose bleeds and loss of vision, plus he was weak and battling an eating disorder due to a combination of issues surrounding his condition.<\/p>\n

\u201cWill is battling so much behind the scenes and he\u2019s had so many tests and seen so many specialists and we haven\u2019t paid a cent, and that\u2019s why we give back, because it takes people like us and Australia to put money back into the hospital so they can keep seeing these kids,\u201d she said.<\/p>\n

Angie\u2019s research found about 83,000 kids were treated by the hospital during 2018\/2019 alone.<\/p>\n

\u201cAnd our child is just one, imagine the amount of money that needs to go through the hospital to fund these things, especially the kids who are rare,\u201d she said.<\/p>\n

This encouraged the Tasic family to create a fundraising group back in 2017.<\/p>\n

Angie asked Will what he wished for. He replied: \u201cI wish that kids didn\u2019t have to feel like me, and families didn\u2019t have to suffer\u201d and Will\u2019s Wish was born.<\/p>\n

Angie and Vid, of Ballarat, have been camping at Bellarine Bayside Caravan Park for the past 23 years, and five years ago started raising money on Good Friday with a few friends and about 10 raffle prizes.<\/p>\n

Fast forward to 2021 and they have about 100 raffle prizes, and family, friends and campers look forward to the day.<\/p>\n

\u201cThe support has been amazing, it\u2019s grown and keeps gaining momentum… it just keeps getting bigger and bigger,\u201d she said.<\/p>\n

The Tasic family has raised about $10,000 since Will\u2019s Wish started, including $2050 from an online raffle during the pandemic last year.<\/p>\n

Funds have gone to the RCH and the Murdoch Children\u2019s Research Institute.<\/p>\n

Angie said the Portarlington community was incredibly important to their family, as they provided funds, support, kept their spirits up and
\nencouraged Will.<\/p>\n

\u201cWe had a terrible year last year where my husband had a double heart bypass and blood transfusion, he was rushed to Melbourne in the first lockdown and we thought we were going to lose him, then six weeks to the day Will broke two arms, and then after that it was the middle of the year and we couldn\u2019t wait to get to Portarlington,\u201d she said.<\/p>\n

\u201cIt\u2019s the best medicine in the world… there is something about being outside, the sea and vitamin D, which is great for Will\u2019s condition.<\/p>\n

\u201cWe always look for the silver lining.\u201d<\/p>\n

Angie said Will was highly involved and excited about this Good Friday \u2013 looking forward to selling his Will\u2019s Wish merchandise, meeting new people and seeing people smile and have fun.<\/p>\n

Angie said she wanted to thank the Portarlington Community Bowls, as Will\u2019s Wish was the recipient of a cheque at the end of the Barefoot Bowls Season.<\/p>\n

\u201cThank you to the businesses that have always donated every year to the Good Friday fundraiser,\u201d she said.<\/p>\n

\u201cWe are also looking forward to working with the Portarlington Football and Netball Club, and Cricket Club this year.\u201d<\/p>\n

Angie also wanted to say a \u201cmassive thank you\u201d to the Bellarine Bayside Caravan Park.<\/p>\n

\u201cPaul, Wayne and the team, from everyone in the management team to the office and the incredible park rangers, everyone is involved and ready and willing to help where they can,\u201d she said.<\/p>\n

\u201cWe can\u2019t do what we do without them, we are just so grateful.\u201d<\/p>\n

Head down to Bellarine Bayside Caravan Park on Good Friday to support the cause, or follow \u201cWill\u2019s Wish\u201d on Facebook.<\/p>\n

From the heart of the city to the tiniest of towns, communities come together to generously support the RCH through the Good Friday Appeal.<\/p>\n

In 2020, the Good Friday Appeal raised an incredible $18,200,000.<\/p>\n

With the collection tin still at the heart of fundraising for the Appeal, and following the events of 2020, the traditional tin shake has been given a helping hand with the Virtual Tin Shake.<\/p>\n

To support the Good Friday Appeal, head to goodfridayappeal.com.au<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"

WHEN Will Tasic isn\u2019t feeling well and his family are having a tough time, they head to Portarlington, which they say is \u201cthe best medicine in the world\u201d. Will, 14, has a rare neurological condition called optical neuritis, which is caused by myelin oliogdendrecyte glycoprotein antibody positive. He was diagnosed at age nine and will […]<\/p>\n

Read More…<\/a><\/p>\n","protected":false},"author":27,"featured_media":38863,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[7],"tags":[],"post_folder":[],"class_list":["post-38862","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"acf":[],"yoast_head":"\nPort community and visitors unite to support Will\u2019s Wish - Bellarine Times<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/timesnewsgroup.com.au\/bellarinetimes\/news\/wills-wish-portarlington\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Port community and visitors unite to support Will\u2019s Wish - Bellarine Times\" \/>\n<meta property=\"og:description\" content=\"WHEN Will Tasic isn\u2019t feeling well and his family are having a tough time, they head to Portarlington, which they say is \u201cthe best medicine in the world\u201d. 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