Lifechanging update

Celebrations are taking place throughout Australia as miracle drug is PBAC approved.
The miracle drug Trikafta has finally been approved, announced on Friday 28 January, for Australians living with cystic fibrosis. This will increase the life expectancy and quality of life for thousands of people, however, one Moorabool family said their son remains out of reach.
“Our young son qualifies for it genetically, but not age based as it’s been given the go ahead for 12 years and over,” Ms Jost told the Moorabool News.
“We are both in tears from joy over the news though,” she said.
Ms Jost said now they need the government to agree on a price with the pharmaceutical company (vertex) and lower access to six-years and over.
Cystic Fibrosis Australia has been campaigning for Trikafta to be available on the PBAC and are celebrating that it has finally been approved.
We urge the Department of Health and Vertex to move swiftly to ensure that the PBS listing happens as quickly as humanly possible.
Trikafta is lifechanging for cystic fibrosis suffers. For the majority of people, it improves almost all areas of life and can increase lung function which can prevent lung transplants and extend life expectancy. Prior to the PBAC approval some Australians choose to privately fund Trikafta at a cost of almost $300,000 per year!
Cystic Fibrosis Australia, CEO, Jo Armstrong said she is delighted that Trikafta is finally available for all Australians who need it.
“We have been campaigning for this outcome for a very long time and now we can finally celebrate,” she said.
Ms Armstrong said they urge Vertex and the Department of Health to move as quickly as possible to make Trikafta available for eligible Australians.
“We still have a long way to go and Cystic Fibrosis Australia will continue to fight for Australians living with cystic fibrosis to get the support they need.”
Cystic Fibrosis Australia is committed to improving the lives of people living with cystic fibrosis though research, advocacy and improving clinical practice. Their goal is to extend CF life expectancy from 37 to 50 years by 2025.
Over 1 million Australians have the cystic fibrosis gene. Every four days a baby is born in Australia with cystic fibrosis. There is no cure.