{"id":18380,"date":"2017-11-16T05:23:17","date_gmt":"2017-11-16T05:23:17","guid":{"rendered":"https:\/\/themooraboolnews.com.au\/?p=1439"},"modified":"2024-02-02T16:55:38","modified_gmt":"2024-02-02T05:55:38","slug":"syndrome-needs-awareness","status":"publish","type":"post","link":"https:\/\/timesnewsgroup.com.au\/themooraboolnews\/news\/syndrome-needs-awareness\/","title":{"rendered":"Syndrome needs awareness"},"content":{"rendered":"<p><strong>By Jessica Howard<\/strong><\/p>\n<p>At just three-years old, Breana Zois is one of 4,000 children born with DiGeorge syndrome each year. <\/p>\n<p>The syndrome, otherwise known as 22.q deletion syndrome, has no cure and is caused by a small missing piece of the 22nd chromosome. <\/p>\n<p>Little Breana, from Bacchus Marsh, has been living with the disorder since birth. Her mother, Nicole Zois said the syndrome can cause close to 200 mild to serious health and developmental issues.<\/p>\n<p>\u201cFor Breana, it affects the whole left side of her body,\u201d she said.<br \/>\n\u201cSo if you start from the top, she suffers from epilepsy, hypoplastic left heart disease and immunosuppression, meaning we have to replace her cells weekly to ensure she has some sort of an immune system\u201d. <\/p>\n<p>Mrs Zois said the chromosomal disorder is believed to be the second most common genetic disorder behind Down Syndrome.<br \/>\n\u201cYet most have never heard of it,\u201d she said. <\/p>\n<p>Earlier this year, an educational seminar was held by the 22.q Foundation in Perth. Mrs Zois said she contacted the director, who said to hold a seminar in Victoria, but funds would need to be raised in order to cover the cost of guest speakers and venue hire. <\/p>\n<p>\u201cWe need to raise about $4,000,\u201d Mrs Zois said.<br \/>\n\u201cI\u2019ve only lived in Bacchus Marsh for about four-months, which has made it hard to raise money as I don\u2019t have any contacts yet. A few people have donated a couple of things to be raffled off, but I\u2019m now looking for that last little bit of funding so that we can set it all up\u201d. <\/p>\n<p>Mrs Zois said the purpose of the seminar was to educate and raise awareness.<br \/>\n\u201cIt\u2019s really daunting to find out your child has been diagnosed with 22.q and a seminar like this will provide information for parents, carers and families on what the disorder is, what research is out there and any new treatment options. <\/p>\n<p>\u201cIt\u2019s also just about raising awareness of what 22.q is and how many families it affects\u201d. <\/p>\n<p>If sufficient funds are raised, the 22.q information seminar will be hosted at the Royal Children\u2019s Hospital in Melbourne in 2018.<br \/>\nTo donate, contact Nicole Zois on 0413 148 351. <\/p>\n","protected":false},"excerpt":{"rendered":"<p>By Jessica Howard At just three-years old, Breana Zois is one of 4,000 children born with DiGeorge syndrome each year. The syndrome, otherwise known as 22.q deletion syndrome, has no cure and is caused by a small missing piece of the 22nd chromosome. Little Breana, from Bacchus Marsh, has been living with the disorder since [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/timesnewsgroup.com.au\/themooraboolnews\/news\/syndrome-needs-awareness\/\">Read More&#8230;<\/a><\/p>\n","protected":false},"author":221,"featured_media":24929,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[15],"tags":[],"post_folder":[],"class_list":["post-18380","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.7 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Syndrome needs awareness - The Moorabool News<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/timesnewsgroup.com.au\/themooraboolnews\/news\/syndrome-needs-awareness\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Syndrome needs awareness - The Moorabool News\" \/>\n<meta property=\"og:description\" content=\"By Jessica Howard At just three-years old, Breana Zois is one of 4,000 children born with DiGeorge syndrome each year. The syndrome, otherwise known as 22.q deletion syndrome, has no cure and is caused by a small missing piece of the 22nd chromosome. 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